About
Kathleen, Greg, Michael and Stephen
Kathleen is a 38-year-old mother of two amazing boys Stephen (6) and Michael (2) and has been married to her husband Greg for 7 years. A few weeks ago she was diagnosed with a very rare form of cancer called Sinonasal Undifferentiated Carcinoma (SNUC). This cancer has affected less than 100 people across the US.
This web site was setup in part to help promote the “Kicking the Snot out of SNUC” fundraising event outside of Facebook but also to try to help raise funds for Kathleen from people who cannot participate in the event but would still like to give something to help. The blog will also be kept up-to-date with any upcoming events and news regarding Kathleen’s battle with cancer.
Please join us in helping Kathleen.
UPDATE 2011/12/20: The above was originally posted on September 22, 2009. A lot has happened since that time… Kathleen has won her battle against SNUC. Unfortunately, others like Saskia and Ashley were less fortunate. Kathleen’s husband Greg died of complications following (non-SNUC) cancer treatment. I decided to leave this page as the main website page because it contains so many comments and so that people know the history of this website/blog. I invite you however to check the Events and News page as anything new will be posted there.
IMPORTANT: If you found this page because you or someone you know is suffering from SNUC, please read this post.
86 Responses to "About"
September 28, 2009 at 8:37 pm
Love it!!! Thanks Marco for getting this up and running!!!
September 29, 2009 at 6:45 am
We’ve all embarked in that journey with you!
Family and friends are rooting for you, “Kick that snot out”!!!!
We love you…..
Georgia, Nicole and Laura…….many thanks for all that you do!
Marco………what can I say! Thanks to you the “smart” one the family :~)
September 30, 2009 at 8:35 pm
It’s hard to express myself in english but, just to let you know that I’m with you all and that I think of you.
Love, Johanne
September 30, 2009 at 10:14 pm
Reste positive ma belle Kathleen. Garde le moral. Tu es une jeune femme très courageuse. Peu importe la distance, nous tous, ta famille du Québec, sommes à tes côtés dans ton combat contre le cancer.
Toi, Greg, Stephen et Michael êtes présents dans nos pensées et dans nos coeurs à chaque jour!
On t’aime!!!
Stay positive my beautiful Kathleen. Keep up you morale. You’re a courageous young woman. Distance doesn’t matter, your Quebec family is with you during your battle against cancer.
You, Greg, Stephen and Michael are always in our thoughts and hearts everyday!
We love you!!!
October 1, 2009 at 3:38 pm
Bonjour à toute cette belle famille. Je suis une amie d’Andrée et même si je n’ai pas le plaisir de vous connaître je pense à vous tous. Je vous envoie des ondes positives pour que vous ayez le courage de passer à travers ces épreuves. Quand je regarde cette photo de vous je sais que vous avez la force et l’énergie qu’il faut.
Je suis avec vous.
October 2, 2009 at 9:17 pm
Kathleen, you and your family are in our thoughts and prayers. You are such a strong women. Stay positive and remember how tough you are. You can beat this!
October 3, 2009 at 11:10 am
Bonjour ma belle,
Je te souhaite à toi et ta famille toute la force et le courage nécessaires pour traverser ces moments si difficiles. De mon côté, j’ai parlé de toi à ma famille et mes amies et nous t’envoyons tous de belles pensées et des ondes positives….. surtout garde le moral…..
October 3, 2009 at 5:13 pm
Hi Kathleen, we think of you and your little family. We send you much strength and courage to fight and win this battle. We love you.
October 4, 2009 at 10:22 am
Bonjour Kathleen,
À tous les jours de notre vie, nous avons tous des défis à relever. Souvent ce sont de petits défis et quelques fois plus gros. Ton “ÊTRE SUPRÊME” viens de t’en lancer un grand.
Mais “IL” te connait. “IL” sait que tu es une combatante possédant une force de caractère énorme et que tu n’est pas du genre à baisser les bras. L’amour de Greg et de tes deux petits
bonhommes vont te nourrir de cette force et courage dont tu
auras besoin pour les semaines à venir. Connaissant tes parents, je sais qu’ils t’ont donnés cette force de caractère
et que tu te retrousseras les manches pour gagner ce combat.
Crois en “TON ÊTRE SUPÊME” (ton Dieu à toi), parle “LUI” à tous
les jours en secret pour qu’”IL” t’accompagne dans ta démarche.
Sois assuré, que pour les jours à venir, nous sommes tous derrière toi et que tu seras une “gagnante” pour nous tous.
Je t’aime.
October 4, 2009 at 8:40 pm
Kathy, You’re in my thoughts and prayers! Know that you have the support you need to win this battle! Keep your spirit strong and beat the “snot” out of this! You’re an amazing woman!
October 4, 2009 at 9:21 pm
Dear Kathleen, You are in our everyday thoughts and we believe that if there is only one person that can beat the snot out of SNUC, it is you . We will be with you along this rocky road and we can see the freeway ahead.
October 4, 2009 at 9:24 pm
Prompt rétablissement et salutations à toute la famille.
October 5, 2009 at 11:39 am
Hi Kathy,
I am a great believer in prayer and in God’s plan for our lives. Wish I had answers for this one! You are a very brave and courageous woman. Never give up-Remember that hope is stronger than despair. Have lots of laughs whenever you can- You already have that snot thing going for you!!!!
You are in my thoughts and prayers-
October 5, 2009 at 12:06 pm
Bonjour Kathleen,
Je voudrais simplement de dire que je pense beaucoup à toi et ta famille. Je t’envoi beaucoup de pensées positive.
Même s’il y a une grande distance entre nous, mes pensées sont avec toi.
Les mots me manquent donc simplement “good luck”.
France
XX
October 5, 2009 at 3:45 pm
Bonjour Kathleen,
Tu es une jeune femme positive et déterminée. Tes yeux et ton magnifique sourire nous démontrent une force de caractère remarquable. Tu es un exemple de courage pour chacun de nous.
Nous sommes assurés que tu remporteras la “victoire”.
Nos meilleures pensées et nos prières vous accompagnent, toi et ta famille, à chaque jour.
October 5, 2009 at 8:40 pm
I just want to say thank you so much for all the words of encouragement and support. It means a lot to our family.
We will keep fighting!!!!!
October 7, 2009 at 6:39 pm
Kathy,
God bless you and your family and give you all the strength to beat this. My prayers will be with you all in this fight.
October 7, 2009 at 10:56 pm
Bonjour Kathleen. Je t’ai connue toute petite. Je t’envoie mille pensées positives pour le courage et la determlnation que tu auras pour passer a travers cette étape de ta vie ta famille et tes amis seront la bon courage une amie d’Andrée.
October 8, 2009 at 12:58 pm
I am hoping in the next few days that I will put my story on. I will explain how the symptoms came about and what I am going through on a day to day bases. Love you all and thank you for your support!!!
October 8, 2009 at 5:10 pm
This is an amazing site. How wonderful for you to be able to keep in touch with everyone, Kath. ps I agree with Linda B. (post # 14) 
)
October 10, 2009 at 10:55 am
Kathy,
My thoughts and prayers are with you and your family. Good luck!
Leslie
October 13, 2009 at 4:25 pm
allo je pense a toi et dit a tes parents que je les salut a la prochaine bye bye
October 18, 2009 at 9:08 pm
katheleen te souvin tu quand j allais te garder c etait de beau souvenir . moi et maman on pense beaucoup a toi et tout va bien aller et tout les jours on pense toit a un autre tentoton t aime beaucoup bye bye
October 13, 2009 at 10:26 pm
You are definitely a trooper. Every picture no matter what is happening to you (had being shaved, Chemo…) you are SMILING. That is what will get you through all of this. The joy you have for life and all it has to offer!!
We are wishing you and your family well… The other Hyslop’s!!
October 14, 2009 at 9:41 am
Even though I don’t know you, positive thoughts are sent to you.
We know what you’re going through, we had 2 children in treatments in the past years, and we fought with them. We know all parents stay aware of all the stress all of you are having. Just don’t give up, we all have a good star that leads to something better.
Your name was put in my basket so you will win that battle.
Gisèle
October 15, 2009 at 6:08 am
Kathleen you are in our thoughts and prayers;stay strong and positive. We love you.
October 15, 2009 at 12:00 pm
Dear Kathleen,
our daughter Saskia (44 mother of two great kids ,Kirsten 17 and Ruben 14) is fighting this horrible cancer for 10 months now,
she was diagnosed with SNUC in december 2008 after 2 months treatment for an eye infection (some sorry eye specialist !)
She has had 38 radiations and 9 rounds of chemo (cisplatine)
and in august 2009 ,80% of the tumor mass was gone, but it returned and now she is in hospital (Rotterdam Erasmus) with high fever. She has double vision, walking is dangerous (she broke a little toe already) driving a car is impossible and so is riding her bik. She lost 10kg of weight and she was always an athletic person (horse riding, Gym) she is now a shadow of the Saskia we knew. We are devastated and the fact that most doctors know nothing about SNUC is very very depressing !
Kathleen keep on fighting !!! our Saskia is doing the same… but
more research must be done about this rare Cancer
all we can do now is pray !!!
p.s. we live in the Netherlands
October 15, 2009 at 3:11 pm
Are they doing or have they done surgery on your daughter? I hope things improve. Please let her know that there are people in the US praying for her too.
October 15, 2009 at 8:55 pm
I am so sorry to hear about your daughter. I know how difficult this is, just tell her to keep fighting. I will keep you and your family in my prayers.
You are right about not enough research. I never knew this type of cancer existed as well as my friends and family members. This cancer needs to be known and I am going to do my best to get it out there.
My prayers are with you.
October 15, 2009 at 4:05 pm
allo ,on sais pas vu souvent vu la distance mais je me souvien bien quand on aete chez ton pere en vacance je t tenverrai des photos, je pense a toi lache pas les desrochers et les lemires c st des batants sois positive je sais que tu passe des mechants moments mais avec boucoup d amour de tous ca va aller je tembrasse et comme dirais grand-mere desrochers que dieu te protege je taime bye
October 15, 2009 at 8:56 pm
Salut Kathleen , nous sommes très long mais nous pensons très très fort a toi et surtout ne lache surtout pas garde le morale et est confiance regarde ma mère Yvonne elle sens est sortie et je suis sur que toi aussi tu pourras faire pareille .Nous prions pour toi nous t aimons très fort malgré qu on se voit pas souvent.
Nous t embrassons xxxxxxxxxxxxxx
October 16, 2009 at 3:34 am
quote
Georgia
October 15, 2009 at 3:11 pm
Are they doing or have they done surgery on your daughter? I hope things improve. Please let her know that there are people in the US praying for her too
unquote
Thank you so much ! it means a lot for us….
no, there was a small chance for surgery in the INI institute in Hanover Germany (Prof.Dr. Draf) but they found metastases in the top of her lungs, surgery is no option then.
p.s. check out the John S. Howland site
October 18, 2009 at 10:48 am
Dear Kathleen,
I think that the last time I saw you, you were a teenager. Your father was so proud of you then and is even more proud of you today. I can tell from your webpage that you are blessed with the love and support of so many family members and friends and that speaks to the person that you are. You are leading this fight but we are there with you.
Sincerely,
Bryon
October 18, 2009 at 11:48 am
allo,tous mes amies te donne beaucoup d amour ,madeleine mon amie femme prie pour toi , ensemble avec tout ce que monde te donne pour t encourager tu va reusssir a passe les mauvaises journee.comme on dirais aujourd hui ces aujord hui demain c est autre chose ,ce qui est imporant c est ton 24 heure demain c est un autre etape ,je taime envoie des becs a ton pere ta mere ,tes soeurs et tes bea enfantsxxxxxxxxxxxa bientot ,diane
October 18, 2009 at 5:58 pm
Dear Kathleen,
The last time we saw each other (besides today) was when we were little girls. Alot of the childhood memories i have when i would visit your home with my dad (Bryon) was alot of love, smiles, and warm hugs~ n~kisses. Well its nice to see some things never change! Please know you also have an abundance of love and support from your childhood buddies as well! There’s nothing me and my dad would’nt do for you and your family! We love you guys. Please continue to stay strong and positive because we have to fight this!
Wishing you and your family well and sending lots of warm hugs!
Love,
Leslie Robinson-Taylor
October 18, 2009 at 9:32 pm
We haven’t met, but I felt its important to encourage you and yours. Keep fighting!
October 20, 2009 at 5:23 pm
Salut Kathleen ! Je suis un ami de Marco. Nous ne nous connaissons pas beaucoup mais nous sommes déjà rencontrés il y a un certain temps. Ton histoire me touche beaucoup. Tu semble très déterminée et c’est ce qu’il faut. Je t’envoie toutes mes pensées pour cette dure épreuve et te souhaite que tout se rétablisse le plus tôt possible. Tu es un exemple de courage. Ne lâche pas ! À la prochaine !
October 20, 2009 at 7:45 pm
Just heard about you via your cousin Marco in Montreal.
Just made a little donation and I would like to wish you courage and hope.
If you are like your cousin, I am sure that you are a good fighter.
Keep thinking positive.
Can’t wait to have good news from you .
October 30, 2009 at 8:22 pm
Bonjour cousine juste un mot d’encouragement pour toi et ta famille. Nous sommes avec toi pour t’aider a avoir la force de guérir le plus tôt possible. nous allons suivre tes progrès sur se site. Dis bonjour à ton père et ta mère. Nous pensons à vous tous. Donat et Fernande sont aussi avec vous. Take care!
November 2, 2009 at 12:10 pm
Allo Kathleen,
Belle grande fille, on se décide enfin à t’envoyer quelques mots ( mieux vaut tard que jamais ), on a tellement cherché les bons mots à te dire pour t’encourager à continuer ton combat contre cette maudite maladie, finalement que dire de plus qu’il n’y a pas une seule journée où on ne pense pas à toi, continue à te battre ma grande, nous sommes certains que tu vas gagné ce dure combat,
Un mélange de Desrochers et de Lemire ca ne baisse pas les bras facilement, de plus il y a beaucoup de gens Là-Haut, qui ont soin de toi, en autre ta grand-mère et marraine qui a elle même combattue un cancer et qui en est sortie gagnante, alors fonce ma GRANDE
Kathleen tu as une très grande place dans nos coeurs on t’aime ma grande fille et on se voit le plus tot possible
Greg, j’ai parlé avec ta belle-mère dernièrement, il parait que tu es un super Papa, continue mon homme nous sommes de tout coeur avec vous tous
bon ok ON LACHE PAS ON EST PAS DES PERDANTS
Ginette & François
Des gros becs à toute la petite famille
November 13, 2009 at 1:39 pm
alloallo, jespere que tu vas mieux, lache pas je suis sur que tu es une combattante je prie pour toi et ta famille dit bonjour a tes parents et soyer courageux dans cette epreuve je vous aimes bye xxxxxxxxxxxxx
November 17, 2009 at 6:45 am
Dear Kathleen
how are you doing ? going better I hope… keep on fighting
we pray for you
Dolf
November 17, 2009 at 10:03 pm
I am doing very well, thank you. I am done with the radiation and chemo treatments and I just found out today that I have a tentative surgery date for the 30th of this month.
How is your daughter doing? I am keeping her and your family in my prayers.
December 8, 2009 at 8:03 am
Dear Kathleen,
I did now want to tell you, but I cannot keep it away any longer,
Our dear daughter Saskia died nov 8th, we are devastated
she was only 44 and leaves her husband and two children 14 and 17 years.
We hope and pray that you will become healthy again !
in tears but with great respect for your battle ..
Dolf and Marijke
p.s. on my spaces there are pictures of our Saskia
December 9, 2009 at 10:09 pm
Dear Dolf,
I am very sorry to hear that Saskia past away. My sincere condolences. I have taken the liberty to post something (here: http://wp.me/pEgmr-91 ) about her and Barb’s daughter (see below).
My thoughts go to your family.
Marco
December 11, 2009 at 9:03 pm
Dear Dolf & Marijke,
I haven’t written sooner because I was not sure what to say. I am so sorry about your daughter and my condolences go out to you, your family and to hers. I am sorry that you have to go through this difficult time and it breaks my heart that you have to endure such pain. I can only continue to pray that you have the strength to continue on. I hope your memories of her will help the healing.
With deepest sympathies,
Kathleen
December 9, 2009 at 2:04 pm
Please let me know if there are any additional research efforts. I lost my beautiful 22 year old daughter a week ago after a 7 month battle with this disease. We buried her on her 23rd birthday.
She was initially treated with chemo to shrink, then chemo / radiation to cure, but the tumor always came back with a vengeance. We went to MD Anderson after the unsuccessful treatments, only to find it had metastisized to her bones, which meant surgery was no longer an option.
This is a horrible disease and I know it can be beat, but we need more research efforts. I would like to start a foundation, to help find a cure.
Please know you are in my heart and prayers…as are all of the victims of this disease.
December 9, 2009 at 10:26 pm
Dear Barb,
My sincere condolences for your lost. We definitely need more research efforts to quickly identify and cure this disease. May I ask how the first symptoms appeared on the case of your daughter?
I will definitely let you know if we hear about any new research or findings about SNUC. We will also post it on this site (in the blog section and in the links) for sure.
Sincerely,
Marco
December 10, 2009 at 5:01 am
Dear Barb
my sincere condolences for your loss, it is inconprehendable to loose a child, Saskia died nov 8th
but ever since our life is a burden. Sleepless nights , crying , the pain…. it gets worse every day !
Saskia started with a tearing left eye in september 2008, after months of (wrong) treatment she went for a second opinion in Rotterdam University Hospital and the SNUC was discovered. She received 9 rounds of Chemo (Cisplatine) and 38 radiations, in July 80%of the tumor mass was gone and full hope she went on
a vacation with her husband and children. Upon return
the last scans showed metastases in her lungs.
Nothing could be done anymore, we went to Germany
to a famous surgeon (dr. Draf), Pittsburgh (dr Snyderman) but all in vain.
The last weeks in October were terrible, she was blind , could not walk, eat ,
She suffered so much !
she s now without pain, but we are destroyed..
she was such a beautiful person, always caring for her children and us.
Her last words, 3 minutes before she died, she touched my face and said : Sorry dad to give you so much grief…
in tears
Dolf
September 26, 2010 at 8:52 pm
Hi My husband was diagnosed with SNUC last July22. He is undergoing cisplatin and radiation. Please pray for him. Pablo Antonio is his name
December 9, 2009 at 10:47 pm
Marco,
Ashley’s first signs were just allergy like. Then, she felt a small knot under her eye. We thought she had a blocked tear duct as a result of her allergies. That was May and by June, her eye was swollen and somewhat disfigured. By July, her eye was bulging so bad that she could not close her eye but halfway. She was in so much pain that we spent 11 days in the hospital. While the chemo/radiation seemed to help, by mid-August the cancer had moved to her lymph nodes. In the end, her face was so disfigured and her pain so immense, it was unbearable for her family and friends. Through this, she was so brave and continued to smile for her friends.
I have seen it worse in younger patients. Not being a health professional, my guess is the higher metabolism of a kid.
Don’t give up hope. Lean on family and friends for support. We had every belief that we could beat this. God had another plan, but know that Ashley is watching over all the SNUC patients and she’s going to help us with this.
God bless,
Barb
December 11, 2009 at 9:20 pm
Barb,
I want to say that I am truely sorry about your daughter. My condolences go out to you and your family. I believe too that she is looking down on us SNUC patients and helping us through. I will continue to pray that the pain will ease with her memories. I am so sorry that you have to go through this.
With deepest sympathies,
Kathleen
December 10, 2009 at 9:24 am
Dolf, Marijke and Barb,
Words are not enough to convey our feelings at a time like this. My husband and I wanted to say that you are in our thoughts and prayers as are your two beautiful daughters.
God bless you,
Steve and Michelle
December 10, 2009 at 9:59 am
Dear Steve and Michelle
thank you so much for your kind words ! it means so much to us,
we pray for Kathleen and she is in our thoughts all the time,
we know what she must be going through..
She will and must prevail !!
we wish you strenght
Dolf and Marijke
December 10, 2009 at 12:48 pm
Dolf,
I know that pain. And the grief is watching them in pain. It was a blessing when she was finally free and at peace. I really want to figure out how to literally, “KICK THE SNOT OUT OF SNUC”
I will be checking with some doctors in the US who do research to look into starting a foundation or something to help others.
Barb
December 10, 2009 at 1:03 pm
Bonjour Kathleen et Greg.
Nous savons Madeleine et moi par quel mauvais moment vous êtes en train de passer. Il y a des situations dans la vie ou il n’y pas de paroles appropriées qui puissent soulager notre mal et nôtre tristesse.
Soyer assurés Kathleen et Greg, que Madeleine et moi ainsi que beaucoup d’autres personnes de notre entourage, prions pour que DIEU intervienne dans ces moments si pénibles de votre vie.
Nous n’oublions pas dans nos prières quotidiennes vos deux charmants garcons: Michael et Stephen, ta Maman et ton Papa ainsi que Michèle et Vicky.
Sans oublié bien entendu les membres de la famille de Greg.
Madeleine et Marcel
December 12, 2009 at 8:05 pm
allo,greg,parfois on oublie celui qui est proche de la personne malade je te remercie d etre courageux pour passer au travers de votre epreuve je suis bien placer pour le savoir ,je prie pour vous tous, kathleen tu devais avoir 5 ans quand moi et danielle,et andree une amie aviont ete passer des vacances chez ton pere tu avais des gant de boxe on s amusais beaucoup de vais retrouver ces photos et te les envoyer ,tu as du courage et de l energie en toi meme si sa parait pas ne laisse pas cette chose t envahir on se bat tous avec toi je vous embrasse dyane dit bonjour a tes parents greg meme si je ne les connait pas et a ubald et michelle xxxxxxxxxxxx
December 13, 2009 at 11:34 am
doctor Carl Snyderman (snyderman@upmc.edu) is a great
doctor and he has knowledge about SNUC…
He is in the Pittsburgh University Centre
He did all he could for Saskia ….
December 13, 2009 at 12:16 pm
Hi Dolf,
Dr. Snyderman is the doctor performing Kathleen’s surgery next Monday. He also performed Kathleen’s last surgery.
Thanks and regards,
Marco
December 13, 2009 at 8:45 pm
I received a response from Dr. Curiel who did some work with Andy Martin, another SNUC victim. He says he is working with researchers at MD Anderson and he said, while slow now, continues his “Bounce for Life”. I talked with Ashley’s oncology nurse on Friday and she is going to talk with the doctors at MD Anderson who we consulted with, to see if there are continued research efforts. Likely, the ones Dr. Curiel works with.
If you could also ask Dr. Snyderman, who will be performing Kathleen’s surgery, perhaps we can find out about more research efforts. I hope to start a foundation in Ashley’s honor and will let you know what I find out.
Kathleen remains in my prayers. God Bless you all!
Barb
December 14, 2009 at 1:21 pm
The Brouwers’ and The Abernathys,
My most sincere and heartfelt condolences on the loss of your daughter/sister/mother/wife. My heart breaks for you. There aren’t any words that I can say that can express how strong and courageous you are to share your experiences with us. I can only hope that it is enabling you to heal, knowing that your families are in our thoughts and prayers daily. We may be strangers and parted by the ocean but we will always share a bond that will never be broken. Saskia and Ashley will be a part of me forever.
As my sister is having surgery, I know that the prayers and well wishes are flooding the skies. I know she will prevail and when she is better and on her feet we will have all of you the thank.
God bless all of you,
Michele
December 14, 2009 at 2:05 pm
Kathleen ! we in Holland are praying for you !!! godspeed !
beat the SNUC !!!!!
December 14, 2009 at 5:38 pm
Hi Mich
so good to read your comment ! just an ocean away we are praying for your sister ! she will and must prevail !
Our family is still mourning our dear Saskia, sleepless nights, tears, physical pain… it is just hell…
dr. Snyderman is the best , trust him … he will do the impossible !
in tears but with great respect, our thoughts are with you
Dolf
December 15, 2009 at 10:00 am
Merci Marco, il est bon de recevoir de bonnes nouvelles. Kathleen et Greg soyez de bon courage. DIEU a permis que le Dr Snyderman et son équipe fassent cette intervention si délicate avec succès. Kathleen nous te souhaitons un bon rétablissement. Que DIEU te bénisse ainsi que toute votre famille. Marcel et Madeleine
December 15, 2009 at 1:58 pm
How is Kathleen doing ? was the surgery successful ?
December 15, 2009 at 2:41 pm
Hi Dolf,
The surgery went well. You can get info about Kathleen’s surgery and other stuff on the blog: http://kickingthesnotoutofsnuc.wordpress.com/news/ (Or click on “Events, News and Blog” above).
Marco
December 28, 2009 at 11:11 am
is there any good news again ?
December 28, 2009 at 11:52 am
Hello Dolf,
Kathleen is back home. You can read all the updates here in the blog: http://kickingthesnotoutofsnuc.wordpress.com/news/
She has not posted much lately because she’s very tired. But from what I know, she’s getting better. I haven’t talked to her in the last week or so.
All the best to you and your family.
Marco
December 28, 2009 at 11:03 pm
Hi Dolf,
Thank you so much for asking about me. I am doing quite well. I am up doing my day to day things without any headaches. My incision is healing quite nicely and my hair is growing back. It’s been 2 wks to the day that I had surgery and I feel great. I go for an MRI in Feb and I go back to work then too.
Keeping your family in my prayers.
January 1, 2010 at 8:20 pm
Salut Kathleen
Bonne Année et surtout bonne santé a toi et ton mari tes enfants de meme aussi a ton pere ta mere et tes soeurs .
Sophie et Tante Yvonne
January 2, 2010 at 8:59 am
Dear Kathleen ,
I am so happy for you, and your family !
keep on going… godspeed !
Dolf
January 10, 2010 at 10:20 pm
Hi Kathleen,
It was nice to finally meet you today. I have heard so much about you from your mother-in-law as well as from reading your blog. Please know that I will continue to keep you in my daily prayers.
Take care. See you at basketball.
Patrice
P.S. Your sons are adorable!
January 19, 2010 at 9:59 am
Bonjour Kathleen
Comment vas-tu ? J`espère que ca vas bien car nous avons plus de nouvelles .
À Bientot
Sophie (cousine)
March 18, 2010 at 4:44 pm
Dear Kathleen,
it was great seeing you on Tuesday, in Presby’s surgical waiting room. You are looking great. At my job I get the chance to meet the most amazing people, you and your family were some of the families that just stand out. You stand out for all of your courage, and stay in my heart forever.
God Bless each and everyone of you.
You, your husband, your two little boys, your mum and your dad.
And as you can see, after talking to you, I was able to get on.
I will always carry you in my heart and in my prayers.
sheryl
March 24, 2010 at 2:21 pm
It was wonderful to see you too. I will make sure that when I am back in the area, I will stop again. Maybe next appointment I can drag my parents along with me again. LOL!!
Thank you so much for your prayers and support. It means a lot to our family.
September 22, 2011 at 11:59 pm
My dad was diagnosed with SNUC yesterday and reading all the notes on the internet I feel hopeless and devastated. Kathleen please l hope this message finds you well and you fought it and to offer any advice on how to fight this battle
September 23, 2011 at 4:27 pm
Lisa,
Where are you located? There are some good hospitals around that have dealt with SNUC (University of Michigan- Dr Marentette, University of Pitt-Dr. Snyderman, MD Anderson-Dr. Lai and others, just don’t remember the names). I would consult the experts because it so rare.
Attitude plays a big part. I think Kathleen demonstrated to us.
Fight the good fight and keep us posted on progress. If I can answer anything directly, my email is babernethy1111@gmail.com.
and while I’m at it…Kathleen, you’re still in my prayers.
October 10, 2011 at 10:04 pm
Lisa,
My father had SNUC about 3 years ago. Thankfully we live in Michigan and he ended up going to the University of Michigan Health system. Dr. Marentette is a great man, he and the many other doctors were very stright forward with my father and told him, this is what we are going to do and this is how we are going to do it. Three years later he is cancer free and doing great. My family and I cannot praise Dr. Marentette enough for what he did. I highly recommend trying to contact him due to his extensive knowledge on SNUC.
George
October 4, 2011 at 8:25 pm
Lisa, I am so sorry that I have not gotten back to you until now. I am so sorry that your dad has been diagnosed with this. The only thing I can suggest is that your dad keep a very strong attitude and a positive one. I cannot say for sure it that is how I beat it but I know when I was diagnosed, I had already knew that I was not going to let “it” win! I was always in a good mood and I just took one day at a time and kept the positive thoughts flowing. I had stage 2 and the size of my tumor was a bit bigger than a golf ball. What stage is your dad in and what is he doing for chemo/radiation? Is he having surgery? If you would like my email address so we can write, please let me know. I will keep you and your dad in my prayers and if you need a shoulder, I am here for you. Kathleen
October 28, 2011 at 3:35 pm
There is hope! Positive attitude and KNOWING he can beat this is key.. I pray for you and your family. It WILL be a rough road, but with support from family and friends he can make it!
September 23, 2011 at 4:15 am
Dear Lisa,
do not give up hope ! Kathleen won the battle and so can your dad !
We wish you and your family all the strenght in the world, you are not alone,
people around the globe are praying for your dad !
sincerely yours
Dolf & Marijke
October 28, 2011 at 3:31 pm
Hi Kathleen, I am excited to find another survivor. I was diagnosed with snuc stage 3 Friday febuary 13 2009. Had chemo cisplatine, then again with radiation, after witch All affected tissue was removed. Including my right Eye with nerves and muscles, cmplete right sinus, and right half of my pallet. Positve attitude and prayers from my family and friends helped me defeat this monster. God bless you, and all that are affected by this rare cancer caled snuc..
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September 28, 2009 at 4:17 pm
We are here for you all!!! We love you and let’s kick the crap (sorry, snot) out of this thing!!!